Baby Gussy Update....Finally!

Tannehill Children June 2012

Well "a while" is kind of an understatement but;  it's been a while, eh? I promise I have a tiny bit of a decent excuse. Crazy doesn't quite reach the level of craziness that hit us through the winter. I know RSV is the last of what I have shared about but that was just the beginning! I know, right?

We were lucky enough to have second surgery in the last few months! Yay us! Poor Mr. Gussy decided he wasn't too fond of all of the surgeries and decided to form some scar tissue. Well, I should say his bowels weren't to fond of all of the surgeries. Wouldn't you know it, they rebelled.  Unfortunately, they didn't do what most of our bowels do when they rebel :-o, instead they decided to form a big ol' chunk of scar tissue that blocked his poor little baby bowels 100%! Needless to say, he got quite sick and ended up air lifted to Spokane for an emergency surgery.  Praise the One and Only, he came through well! So, do you want hear the big, fat "Praise the Lord" Miracle on this one? If you haven't noticed the pattern yet, the good Lord seems to think that we need to be on the edge of total collapse often, but He always saves us from that total collapse. Apparently, we're hard headed or something, and need to be reminded of His saving grace often, I dunno.

So, while sitting in the emergency room we are talking to our fab doctor who decides, after calling Spokane and asking their opinion as well, that it is ok for Augustus to go by ambulance instead of flight. As he leaves the room, I look up at Gussy's monitor and notice that his Oxygen saturations are dropping rapidly, keep in mind here that breathing had not yet been a problem. He gets down to the 50's and Luke yells out that we need help... The entire team rushes in, doctor yells for the intubation team to come NOW, (Insert Luke and I having a nervous break down.....HERE), doctor tells them to call MedStar (flight team), he's flying... 2 minutes later intubation team arrives ready to start their business... Nurse comes in and says that MedStar is called... Bam! Sats instantly go back to the 90's!  Just to clarify, the doctor was watching the waveline the entire time and it WAS picking up the signal....

Are you ready for the big "wow moment"?

Mamma and children, June 2012

Fast forward to after flight and surgery... Surgeon comes out and tells us that he was able to remove the obstruction without taking any of his bowels. He goes on to tell us that a very large part of his intestines were already purple and nearly dead. Another hour, maybe less, he would have lost a very large part of his intestines! Do you see it? UH-MAY-ZING!  God dropped Gussy's Sats to get him there on time, to save his bowels! Breathing was never an issue outside of that ONE event that got him there in time! Just like I said, right on the edge, but saved by grace! Thank you Jesus!  I will try my best to get it through my thick skull this time, I promise!

Daddy and Children, June 2012

Wild ride, yes? Yeah, for us too.

First hair curly headed hair cut!

So to move on from that ride we'll go onto our bitter sweet news. Gussy had a trip to his neurologist recently and the dreaded day came. We got our "official" diagnosis. Gussy has Spastic Quadriplegic Cerebral Palsy. Whew, mouth full! We knew it was coming but still the sting of the words were a little hard to chew. So what makes this trip sweet, you ask. She was absolutely BLOWN AWAY at the progress he has made since January when she saw him last! In January he did not move his legs at all. In January he hardly responded at all to her toys. In January all around he was just still at the 1 month old stage of development. Now? He has started bearing weight in his legs a little! HUGE! He grabbed at toys! HUGE! He has some verbal babbling/growling going on! HUGE, HUGE, HUGE!! And to boot, he is on bolus feeds of REAL food, meaning instead of a slow drip of formula 24 hours a day, he has three meals of a blenderized diet of real food! HUGE, HUGE, HUGE!! And get this, HE IS HEARING VERY WELL *WITHOUT* HIS HEARING AIDS!! Oh yeah, on the healing ( please insert horribly embarrassing dance here.)!!

So cool, even in girly glasses!

And then she said it....

The words that brought me to tears and filled me with renewed hope....

I.

Expect.

Him.

To....

WALK! Yes, you read it right, WALK!

Yeah, that's me bearing ALL my own weight! 

MmmHmm!

Does she think it will ever be "normal"? No. But she does think he will do it from her most recent exam, and was not very hopeful back in January!!!!!  Praise you Jesus, You know just when I need that new little dose of hope talk!!!








So for my last bit of Praise ( That I have time to write. My whole life is a praise at this point!)

My sweet baby boy has blessed me to no end....

He learned to smile just so I could breathe...What a good boy! 

I love you too, Mamma, don't worry <3

Living In Nothing but His Mercy,

The Tannehill Family